Susan Perri shared her healthcare story during an event with Congressman Suhas Subramanyam. Living with stage 4 melanoma, and caring for her 38-year-old son who has cystic fibrosis, Susan spoke passionately about the life-saving role that science and medical research have played in their care. She praised the exceptional treatment they both receive from Inova Health and stressed the importance of continued funding for scientific advancement.
In a recent video published by the Atlanta Journal-Constitution, the growing Fired but Fighting movement—led by former CDC employees and their supporters—gathered at Senator Jon Ossoff’s town hall to demand accountability and advocate for public health protections.
At a public town hall, former CDC communications employee Sarah Boim delivered a powerful speech after her termination. She explained that her role was to make public health communications more efficient—ensuring life-saving information reached the public quickly and clearly. Despite doing her job effectively, she was fired, along with many others, as part of what she described as a politically motivated attack on public health.
In January 2020, a new drug was released through a partnership between Vertex Pharmaceuticals and the NIH. It’s called a gene modulator. This drug changes my DNA—it targets the mutated protein in my chromosome and gets it to function properly. It completely changed my life.